Thank you Aliyah for organizing this. I enjoyed reading your summary – although was scared to read that Sick Kids had close down their plagiocephaly clinic due to overwhelming demmand …. I am at the point of this myself!
I would be very interested when others come onto the site to know how programs are resourced and what the typical referral rate is. In BC I run the “provincial” plagio clinic. (me, myself and I) I have half a day a week and see about 6/7 kids in that time (and then spill over into my othercase load with follow-ups, phone and email consults etc). I do have neurosurgical support if I suspect synostosis, but it is getting out of control.
I did a provincial telehealth education last fall and had over 150 registrants at 22 sites – and other centres in the province are starting to run their own programs, and then referring the bad cases on to me. We will are getting a starscanner next week, both for measurement and for fabrication of bands as the orthotist who has been making them is swamped.
I would be very interested in sharing resources and maybe joining others to lobby the CPA to increase physician education around prevention and when to refer (inappropriate referrals are drowning me). I also agree that a prenentative public health approach is needed for how to position babies. A poster saying to do tummy time is not enough – many mom’s don’t know how. I would also like to ban all car seat stroller systems!
Thanks – and I hope others join in
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